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21 Sep

Global dementia costs hit £388bn

Social care, unpaid care and medical costs total more than 1% of GDP and are likely to rise by 85% by 2030, report says

The global cost of dementia this year will be £388bn – more than 1% of GDP – and governments are unprepared to meet the challenge, according to a report released today.

The cost of social care, unpaid care by relatives and the medical bills for treating dementia was calculated in the World Alzheimer’s Report 2010. Experts from the Karolinska Institute in Sweden and King’s College London examined the cost of dementia care and found that, if it was a country, it would be the world’s 18th biggest economy.

If it was a company, it would be the world’s biggest by annual revenue, higher than Wal-Mart (£265.6bn) and Exxon Mobil (£200bn).

Campaigners have already warned that the costs of caring for people with dementia are on the rise, mostly due to people living longer. The number of people with dementia, currently 35.6 million, will almost double by 2030 to 65.7 million, and more than triple by 2050, when it is estimated there will be 115.4 million people with the disease.

The study said the costs will rise even faster than the prevalence of dementia – there could be an 85% increase in worldwide costs by 2030. In the UK, the Alzheimer’s Society estimated dementia currently costs the country £20bn a year.

The report was issued to coincide with World Alzheimer’s Day and was commissioned by Alzheimer’s Disease International (ADI).

Dr Daisy Acosta, chair of ADI, said: “This is a wake-up call that Alzheimer’s disease and other dementias are the single most significant health and social crisis of the 21st century. World governments are woefully unprepared for the social and economic disruptions this disease will cause.”

Professor Martin Prince, from the institute of psychiatry at King’s College London, co-authored the report. He said: “The care of people with dementia is not just a health issue – it is a massive social issue. This is particularly true in low- and middle-income countries which lack adequate systems of formal care. Governments must show greater leadership, working with all stakeholders, to drive solutions to the long-term care issue.”

The study recommends that all governments formulate long-term plans for dealing with dementia, and praises work already being done in France, Australia and England.

It said research into the disease must also be properly funded – currently it lags far behind other conditions like heart disease and cancer.

Ruth Sutherland, interim chief executive of the Alzheimer’s Society, said the shocking statistics in the report show the global dementia crisis cannot be ignored.

“These sky-high figures represent not only a huge economic burden but also reflect the immeasurable impact dementia has on the lives of millions of people across the world.

“There are 750,000 people living with dementia in the UK and this number is set to reach a million within a generation.

“If we are to transform lives and reduce costs, we need to act now. The government must lead the way in ensuring national dementia strategies are fully implemented and dementia research is given the funding it so desperately needs.”

20 Sep

Active Citizens of the year 2010!

Nominate now!

Active Citizen Awards 2010 recognise commitment and excellence in different areas of Active Citizenship.

Does your friend, family member, neighbour or colleague deserve recognition for making a difference in Southwark in one of these six categories?

Keib Thomas Community Activist Award (for making a difference in Southwark)

Community Group Member of the Year

Rising Star

Citizen Governor

Good Neighbour of the year

Citizen View-Giver of the year

The Active Citizens Awards will take place at the Amigo Hall next to St George’s Cathedral on Friday 29th October 2010.

Nominate online at: www.volunteercentres.org.uk

or call FREEPHONE 0800 0185 692

or e-mail getactive@volunteercentres.org.uk

20 Sep

Drama and storytelling workshops for carers

Rosetta Life is offering carers in Lambeth and Southwark the chance to participate in a series of four storytelling workshops.

Rosetta Life is an organisation of professional artists that enables people with life-threatening illnesses and their families to explore experiences of significance through video, photography, drama, music, poetry, dance and fiction.

The workshops are part of a creative process leading to a theatre performance that will raise awareness of the issues and challenges faced by carers living and working in Lambeth and Southwark.  The storytelling workshops will enable people to share stories in a supportive group and will give people access to professional creative writing and drama skills.

Four workshops will take place at Roots and Shoots (www.rootsandshoots.org.uk) a venue in central Lambeth in September on Wednesday mornings from 11.00 – 12.30.  Lunch will be provided afterwards.  Workshops are open to all carers working and living in Lambeth and Southwark and are free of charge but participants must register in order to receive a free place.  For more information about the workshops please contact Lucinda Jarrett at the Rosetta Life office.  Email: Lucinda.Jarrett@rosettalife.org or telephone Lucinda Jarrett at the office on 01608 676 662

This innovative arts project has been conceived in partnership with The Modernisation Initiative End of Life Care Programme. The aim of the project is to work with people across the community, to raise awareness about death, and to create opportunities to discuss how we could deliver exceptional end of life care.

The End of Life Care Programme is committed to improving services in Lambeth and Southwark so more people have a good experience of care while living with serious illnesses.  The Modernisation Initiative is a partnership with patients, local residents, acute and primary health and social care, voluntary and independent sector organisations. This programme is funded by Guys and St Thomas’ Charity, with support from Kings’ College Hospital Charity and South London and the Maudsley Hospital Charitable Trustees. For detail visit:  www.gsttcharity.org.uk/projects/eolc.html

20 Sep

EMS Research – Paid Alzheimer’s Study – £100

Dear Sir/Madam,

I am writing to you on behalf of EMS Research. We are currently conducting a study into Alzheimer’s disease. This study consists of a 90 minute focus group session at our facility in Chiswick, West London, for which we are offering an incentive of £100 for your time

We have two sessions on Wednesday 22nd September, the first between 3:00 and 4:30 for Carers for Mild Alzheimer patients, and the second between 5:30 and 7:00 pm for people who are at risk of getting Alzheimer’s in the future (namely relatives of current sufferers)

The aim of this study is to find out what is missing in the treatment of Alzheimer’s, what treatments people would like to see in the future, and to give an opportunity for participants to voice their opinions and give general feedback on the disease

We do apologise for the short notice on this study. Any help that you can give us in locating appropriate people will be invaluable to our study.

I would like to assure you that there is no product marketing, promotion or sales involved in the research. As a member of ESOMAR, the market research regulatory authority, we are bound by its strict code of conduct. As such we never pass on contact details to third parties and any information we gather is aggregated in such a way as to ensure patient anonymity

If you are interested in taking part in this interview, please feel free to get in contact either by email or on the telephone number below to find out more details.

Once again, your participation would be greatly appreciated. If you can forward this letter to as many people as possible it would enable us to offer the chance to participate in this study to as many people as possible. I have also attached a flyer that you can pass around or put on your notice board, if you wish. Please do not hesitate to contact me should you require any more information.

Thank you in advance,

Kind Regards,

Vincent Wills

Database Manager

Phone: +44 (0) 20 8747 3620

Mobile: +44 (0) 78 8966 9865
Vincent.wills@ems.eu.com

15 Sep

Camberwell Community Council, Wednesday 22 September

The next meeting of Camberwell Community Council on Wednesday 22 September, in Southwark Town Hall.  This is your chance to meet your councillors, find out what is happening in your area and to have your say about local issues.  You can also meet other people from your area, council officers and service providers.

The theme of the meeting will be “old age in an age of cuts” and will include:

a talk on the theme from Brenda Bond of Age Concern Lewisham and Southwark as well as presentations and discussions on:

  • Southwark’s street leaders
  • an update on the budget consultation
  • transport in Camberwell
  • Camberwell leisure centre update and
  • the revitalisation of Burgess Park.

In addition if you want to hear The Welcome Singers perform then come along from 17:45.

Date:           Wednesday, 22 September 2010

Venue:  Southwark town hall, Peckham Road, SE5 8UB on the ground floor

Time:           6 p.m. – 8 p.m.

The dates of future meetings are:

Thursday, 4 November 2010

Tuesday, 7 December 2010

Wednesday, 2 February 2011

Wednesday, 2 March 2011 and

Wednesday, 20 April 2011.

10 Sep

Do you care for someone with cognitive impairment problems

Helping your patients to manage their cognitive function 15th September, Cardiff

Special Offer for Carer’s – Delegate places at £75 We have a limited number of places available for carers at the special price of £75.  Please quote ‘Carer75’ in the discount code box when completing your online registration to ensure you receive the  £75 delegate place.

This workshop is ideal for any health or social care professional wishing to learn how they can support people with cognitive impairment problems.

It is particularly relevant to those professionals caring for people who have had a TBI, Stroke, have early stage dementia, Multiple Sclerosis, Parkinson’s disease or Epilepsy.

Run by Dr Anita Rose, Clinical Psychologist, from the Walton Centre for Neurology and Neurosurgery you will learn about:

  • Brain function and cognition
  • Factors that impact on cognition e.g. fatigue, sleep, pain and emotions
  • Strategies for coping
  • Explaining cognition to patients

Here are just a few comments from the previous workshop:

“Having a course constructed and delivered by a cognitive expert was a rare treat”

I enjoyed the day and gained lots from it”

To book your place go to http://guest.cvent.com/d/vdqlcl or go to www.communitytherapy.org.uk/events.html is the link does not open.

All delegates will also receive a free copy of the new handy sized booklet written by Dr Rose called, ‘MS and Cognitive Function – Top tips for promoting self care’, details of which can be found at http://guest.cvent.com/d/pdqpc9

9 Sep

New online soap launches today

The series has been designed to engage young people with relevant social and ethical issues. One of the key themes in the series is Young Carers, with one of the main characters caring for his father. The series is accompanied by a blog and a discussion forum to inspire debate regarding the topics highlighted in the shows.

Being Victor has the potential to make a strong impact amongst teenagers and improve understanding of the daily challenges that face young people acting as primary carers for a member of their family. As well as being watched by young people for entertainment, each episode can be used by youth groups and teachers wishing to engage with the topics covered. For more information, and to watch the series from 11.30 today, please follow the link below:

Being Victor

9 Sep

Have your say on the Carers and Finance Survey 2010

As we all know, caring can have a disastrous impact on carers’ finances. The Princess Royal Trust for Carers wants to find out from at least 1,000 carers across the country how the current economic climate is effecting their financial situation. These findings will be used to raise national and regional media awareness of this issue and will be fed into the National Carers Strategy consultation.

Here is the link to the survey - http://www.surveymonkey.com/s/9KX976C

7 Sep

London Mental Health Carers Network Meeting

The London Mental Health Carers Network has been in existence for several years and is hosted by the Department of Health Carer’s Programme (London). It is a network of carers, service users and professionals who work with families and carers in mental health services. The Network meets 4 times per year to discuss key mental health issues, participate in consultation and to share experience and good practice.

Participants include carers and carer-professionals, mainly from adult mental health services; we are looking to broaden the membership to include carers of children & adolescents with mental health needs, and carers of people with dementia.

The Network is contributing to London-wide work encouraging local authorities and other organisations to build services for carers (across all care groups) which will be sustainable during the difficult times ahead.

The next meeting of the Network is on 22nd September and will focus on two key areas: Carers of Children & Adolescents with mental health needs and Young Carers

This event is free of charge and is open to anyone with an interest in these two areas.

Regards

Sheila Lakey
D.H Carer’s Programme Lead (London)

Panna Kotecha
Project Administrator
Social Care and Partnerships - Department of Health (London Region).
5th Floor Riverwalk House
157 - 161 Millbank
London
SW1P 4RR
Direct Line: 0207 217 3046
Fax: 0207 217 3464
7 Sep

Warning on scam electricity prepayment keys

Carers are advised to be vigilant over the coming months to a scam involving electricity prepayment meter keys.

Criminal gangs have gained the ability to clone the prepayment keys used on this type of meter, which they use to offer fraudlent discounted credit to customers.  An estimated 85,000 households have been approached by doorstep salesmen since the start of the summer, according to industry body Energy UK.

But customers who buy the half-price black market credit could end up having to pay again for the energy use.  The gangs, who sometimes claim to be from the energy companies, typically offer £50 worth of prepayment meter top-up at half the price.  The salesmen then push the cloned key into the householder’s meter to add the credit.  Customers get their extra electricity but, since the credit is illegal, they may end up having to pay their energy supplier as well – effectively paying twice.

Since a fairly high number of carers in Southwark use prepayment meters, we wanted to draw your attention to this scam.  Energy UK has advised that no official sellers of electricity meter top-ups operate door-to-door and that customers are being asked to report to Crimestoppers anyone they know selling top-ups illegally.

Find us

Southwark Carers
3rd Floor, Walworth Methodist Church,
54 Camberwell Road, London, SE5 0EW
View map and directions

Contact us

020 7708 4497

Find us

Nearest tube: Elephant & Castle underground station (Northern and Bakerloo lines).

Nearest Railway Station: Elephant & Castle

Buses from Elephant and Castle: ask bus driver for Burgess Park. Bus numbers: 12, 171, 148, 176, 68, 484, 42, 40, 45