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4 Oct

FREE event for people with dementia and their carers

Excel London 19 October 2010

The acclaimed actor and writer Simon Callow will attend the opening event of the UK’s Dementia Services Development Centre 21st Birthday celebrations. The world’s first dementia centre will mark its birthday at their 4th International Dementia Conference in London. www.londondementiaconference.com

The conference, ‘Coming of Age: Dementia in the 21st Century’ takes place over 3 days from the 19th-21st October 2010  and will brings together expertise and opinion from 17 different countries and address key issues of the UK dementia strategies.

Free Exhibition and Information Day: 19 October

The Dementia Services Development Centre (DSDC) will be hosting a free event, focusing on many of the issues relevant to people with dementia and everyone who supports them. For 21 years the DSDC has been raising awareness about dementia and working to improve all aspects of care for people with dementia. This event is suitable for everyone with an interest in dementia, including health and social care professionals and students, but with a particular focus on people with dementia and their carers/family members

This is an opportunity for you to:

• learn about practical approaches for carers of people with dementia

• find out about exciting developments taking place in dementia care and research

• receive a free information goodie bag

• learn more about the National Dementia Strategy

• see new products that can improve the quality of life of people with dementia, including assistive technology products, from 45+ exhibitors

• get advice from experts and charities dealing with a range of dementia issues

Further information about this event can be found here http://events.dementia.stir.ac.uk/%E2%97%8F-free-exhibition-and-information-event

International conference – Coming of Age: Dementia in the 21st Century: 19-21st October 2010

This is a critical event for all those that work with dementia. As you can see the programme is extensive and covers the major elements of the English Dementia Strategy

http://events.dementia.stir.ac.uk/sites/default/files/attachments/Programme%20Pages%20from%20Flyer%2019.03.2010_2_1.pdf

In addition there are Breakfast and Lunchtime sessions, that you can read about via the website. http://events.dementia.stir.ac.uk/breakfast-sessions

http://events.dementia.stir.ac.uk/lunchtime-sessions

We are offering a special discounted rate for people with dementia and their carers of £100 for one day or £150 for both days.

1 Oct

New rights to protect carers from discrimination

Today (1 October 2010), millions of people caring unpaid for disabled people gained new rights under the Equality Act 2010 which will mean that they cannot be directly discriminated against or harrassed because they are caring for someone who is disabled.

Imelda Redmond CBE, Chief Executive of Carers UK, said, “We often hear of situations where carers have been treated less favourably by employers, overlooked for promotion, or not allowed the flexibility they are legally entitled to in work. Around 3 million people currently juggle work with care and these rights could make a big difference. The employers that we work with through Employers for Carers are already supporting carers better in the workplace and have found real business benefits as a result – saving both money and keeping valuable staff – as well as improving carers’ lives.

She added, “Carers UK has fought for and won many rights for carers over the years, but this is a significant step forward that many carers have been waiting for.

The new rights also protect carers where they are provided with a worse service than someone who isn’t caring for a disabled person. It also includes protection where carers are discouraged or prevented from using a service because they are caring for a disabled person.

27 Sep

Interactive theatre workshops for carers

The GMC is developing new online learning materials for doctors providing case study examples of best practice. To assist in the development of the guidance, two interactive theatre workshops, called Wood for the Trees, are being held on 5th October in the Simulation and Interactive Learning Centre at St Thomas’ Hospital, and 6th October in the Robens Suite at Guy’s Hospital (both starting at 5.30pm) in partnership with Guy’s and St Thomas’ Charity. Please see the attached flyer for more details.

Wood for the Trees is about a young woman with a learning disability and her experience of accessing healthcare. During the performance the audience of doctors, GP trainers and students, people with learning disabilities and their carers, will be encouraged to direct the actions of the health professionals to improve the outcome for the patient.

The Guy’s and St Thomas’ hospitals performances of Wood for the Trees, which are free, will launch a national tour of the play allowing doctors from across the country to contribute towards the guidance materials, which will address issues such as communication, dignity, consent, confidentiality and clinical issues, such as palliative care.

If you would like to attend, please call Bimpe Ajala on 020 7189 5314 or email events@gmc-uk.org.

Although this training tool is aimed at doctors (both hospital and primary care), we would particularly welcome local people with learning disabilities and their supporters/carers (reasonable travel costs will be reimbursed) , as well as people working in other roles within local health and social care services.

Play invite

24 Sep

Met Police – Southwark Safer Neighbourhood Teams

Safer Neighbourhoods teams spend most of their time out on patrol in your neighbourhood, meeting the community and identifying and dealing with those crimes and issues you have told us cause you most concern. Therefore, your team adjusts its shift pattern to address these priority issues.

Your Safer Neighbourhoods team wants to hear from you. If your call is not answered, please do leave a message on the answerphone or send them an email. A member of the team will get back to you.

Safer Neighbourhoods teams are not there to provide a 24-hour response, this is the role of response team officers. Response team officers do pass on information to Safer Neighbourhoods teams as appropriate.

A full list of contacts are detailed below, if you are unsure which area you fall into please visit http://www.met.police.uk/teams/southwarkThe website has an interactive mapping feature which will let you know the correct person to contact.

  • Brunswick Park     020 7232 6318     BrunswickParks.snt@met.police.uk
  • Camberwell Green     020 8649 3587     CamberwellGreen.snt@met.police.uk
  • Cathedrals     020 8721 2801     Cathedrals.snt@met.police.uk
  • Chaucer     020 8721 2441     Chaucer.snt@met.pnn.police.uk
  • College     020 8721 2442     College.snt@met.police.uk
  • East Dulwich     020 8721 2447     EastDulwich.snt@met.police.uk
  • East Walworth     020 7232 6258      EastWalworth.snt@met.police.uk
  • Faraday     020 7232 6262     Faraday.snt@met.police.uk
  • Grange     020 8721 2439     Grange.snt@met.police.uk
  • Livesey     020 8721 2436     Livesey.snt@met.police.uk
  • Newington     020 8721 2437     Newington.snt@met.police.uk
  • Nunhead     020 8721 2445     Nunhead.snt@met.police.uk
  • Peckham     020 8721 2728     Peckham.snt@met.police.uk
  • Peckham Rye     020 8721 2443     PeckhamRye.snt@met.police.uk
  • Riverside     020 8721 2440     Riverside.snt@met.police.uk
  • Rotherhithe     020 8721 2435     Rotherhithe.snt@met.police.uk
  • South Bermondsey     020 8721 2802     SouthBermondsey.snt@met.police.uk
  • South Camberwell     020 8721 2448     SouthCamberwell.snt@met.police.uk
  • Surrey Docks     020 8649 3588     SurreyDocks.snt@met.police.uk
  • The Lane     020 8721 2769     TheLane.snt@met.police.uk
  • Village     020 8721 2446     Village.snt@met.police.uk
23 Sep

Broke and broken: carers battle poverty and depression

Over one in three (37%) carers do not want to wake up in the morning because of dire financial circumstances and are calling on the government for greater support, reveals new research launched today (Thursday 23rd September) by The Princess Royal Trust for Carers.

The survey of 800, who care unpaid for a sick and disabled family member, found that over half (53%) of all carers who work earn less than £10,000 a year, with three-fifths (60%) having to spend all of their savings to support the person they care for. 89% say that they are financially worse off as a result of caring and, consequently, almost two-fifths (39%) fear they will lose their home.

To cover basic living needs, one in ten (10%) carers questioned have borrowed exceptionally high-interest loans (41% plus APR), while three-fifths (62%) have had to borrow money off family and friends.

The added financial pressures are causing nearly half (45%) carers to want to run away from their caring role, while 15% are turning to alcohol or drugs to cope. Unsurprisingly, over one in three (37%) carers surveyed are fearful of the future.

Karen, 42, is one example of a carer battling poverty and depression. Karen became a carer for her husband when he was diagnosed with neurofibromatosis and chronic arthritis. She told The Trust: “Since Mark became ill we have cascaded into poverty. I was declared bankrupt; I have lost a well-paid job, our house and the future we thought we’d have – all as a result of my caring role. I was so desperate I even borrowed from a loan shark to cover an electric bill and was charged 47 per cent interest per day.

“The stress of caring and the financial worries we’ve had to endure, led me to have a nervous breakdown a few years ago. I am better, but, some days I feel on my own, fraught with worry and at breaking point.

“I never thought we’d be a couple who depended on the state for help. We can just about cover the bills, but we still struggle to pay for food and cover our rent. I feel I have been penalised by the government for caring for my husband.”

To address these issues, one in two (49%) carers surveyed is calling on the new coalition government to increase the Carer’s Allowance and one in three (29%) want greater support to make it easier for them to combine caring and paid work.

Carole Cochrane, Chief Executive at The Princess Royal Trust for Carers says: “The new coalition government has an opportunity to improve the lives of millions of carers. As part of their welfare reform they must ensure greater financial support for carers, and the Comprehensive Spending Review must deliver the improved community support for carers to combine work and care, as pledged already by the government in June. Six million carers will judge the government by the decisions they make in the next two months.”

The Princess Royal Trust for Carers has launched a new advice guide for carers 10 things every carer should know. Carers can also get help by visiting their local Trust Carers’ Centre.

21 Sep

Global dementia costs hit £388bn

Social care, unpaid care and medical costs total more than 1% of GDP and are likely to rise by 85% by 2030, report says

The global cost of dementia this year will be £388bn – more than 1% of GDP – and governments are unprepared to meet the challenge, according to a report released today.

The cost of social care, unpaid care by relatives and the medical bills for treating dementia was calculated in the World Alzheimer’s Report 2010. Experts from the Karolinska Institute in Sweden and King’s College London examined the cost of dementia care and found that, if it was a country, it would be the world’s 18th biggest economy.

If it was a company, it would be the world’s biggest by annual revenue, higher than Wal-Mart (£265.6bn) and Exxon Mobil (£200bn).

Campaigners have already warned that the costs of caring for people with dementia are on the rise, mostly due to people living longer. The number of people with dementia, currently 35.6 million, will almost double by 2030 to 65.7 million, and more than triple by 2050, when it is estimated there will be 115.4 million people with the disease.

The study said the costs will rise even faster than the prevalence of dementia – there could be an 85% increase in worldwide costs by 2030. In the UK, the Alzheimer’s Society estimated dementia currently costs the country £20bn a year.

The report was issued to coincide with World Alzheimer’s Day and was commissioned by Alzheimer’s Disease International (ADI).

Dr Daisy Acosta, chair of ADI, said: “This is a wake-up call that Alzheimer’s disease and other dementias are the single most significant health and social crisis of the 21st century. World governments are woefully unprepared for the social and economic disruptions this disease will cause.”

Professor Martin Prince, from the institute of psychiatry at King’s College London, co-authored the report. He said: “The care of people with dementia is not just a health issue – it is a massive social issue. This is particularly true in low- and middle-income countries which lack adequate systems of formal care. Governments must show greater leadership, working with all stakeholders, to drive solutions to the long-term care issue.”

The study recommends that all governments formulate long-term plans for dealing with dementia, and praises work already being done in France, Australia and England.

It said research into the disease must also be properly funded – currently it lags far behind other conditions like heart disease and cancer.

Ruth Sutherland, interim chief executive of the Alzheimer’s Society, said the shocking statistics in the report show the global dementia crisis cannot be ignored.

“These sky-high figures represent not only a huge economic burden but also reflect the immeasurable impact dementia has on the lives of millions of people across the world.

“There are 750,000 people living with dementia in the UK and this number is set to reach a million within a generation.

“If we are to transform lives and reduce costs, we need to act now. The government must lead the way in ensuring national dementia strategies are fully implemented and dementia research is given the funding it so desperately needs.”

20 Sep

Active Citizens of the year 2010!

Nominate now!

Active Citizen Awards 2010 recognise commitment and excellence in different areas of Active Citizenship.

Does your friend, family member, neighbour or colleague deserve recognition for making a difference in Southwark in one of these six categories?

Keib Thomas Community Activist Award (for making a difference in Southwark)

Community Group Member of the Year

Rising Star

Citizen Governor

Good Neighbour of the year

Citizen View-Giver of the year

The Active Citizens Awards will take place at the Amigo Hall next to St George’s Cathedral on Friday 29th October 2010.

Nominate online at: www.volunteercentres.org.uk

or call FREEPHONE 0800 0185 692

or e-mail getactive@volunteercentres.org.uk

20 Sep

Drama and storytelling workshops for carers

Rosetta Life is offering carers in Lambeth and Southwark the chance to participate in a series of four storytelling workshops.

Rosetta Life is an organisation of professional artists that enables people with life-threatening illnesses and their families to explore experiences of significance through video, photography, drama, music, poetry, dance and fiction.

The workshops are part of a creative process leading to a theatre performance that will raise awareness of the issues and challenges faced by carers living and working in Lambeth and Southwark.  The storytelling workshops will enable people to share stories in a supportive group and will give people access to professional creative writing and drama skills.

Four workshops will take place at Roots and Shoots (www.rootsandshoots.org.uk) a venue in central Lambeth in September on Wednesday mornings from 11.00 – 12.30.  Lunch will be provided afterwards.  Workshops are open to all carers working and living in Lambeth and Southwark and are free of charge but participants must register in order to receive a free place.  For more information about the workshops please contact Lucinda Jarrett at the Rosetta Life office.  Email: Lucinda.Jarrett@rosettalife.org or telephone Lucinda Jarrett at the office on 01608 676 662

This innovative arts project has been conceived in partnership with The Modernisation Initiative End of Life Care Programme. The aim of the project is to work with people across the community, to raise awareness about death, and to create opportunities to discuss how we could deliver exceptional end of life care.

The End of Life Care Programme is committed to improving services in Lambeth and Southwark so more people have a good experience of care while living with serious illnesses.  The Modernisation Initiative is a partnership with patients, local residents, acute and primary health and social care, voluntary and independent sector organisations. This programme is funded by Guys and St Thomas’ Charity, with support from Kings’ College Hospital Charity and South London and the Maudsley Hospital Charitable Trustees. For detail visit:  www.gsttcharity.org.uk/projects/eolc.html

20 Sep

EMS Research – Paid Alzheimer’s Study – £100

Dear Sir/Madam,

I am writing to you on behalf of EMS Research. We are currently conducting a study into Alzheimer’s disease. This study consists of a 90 minute focus group session at our facility in Chiswick, West London, for which we are offering an incentive of £100 for your time

We have two sessions on Wednesday 22nd September, the first between 3:00 and 4:30 for Carers for Mild Alzheimer patients, and the second between 5:30 and 7:00 pm for people who are at risk of getting Alzheimer’s in the future (namely relatives of current sufferers)

The aim of this study is to find out what is missing in the treatment of Alzheimer’s, what treatments people would like to see in the future, and to give an opportunity for participants to voice their opinions and give general feedback on the disease

We do apologise for the short notice on this study. Any help that you can give us in locating appropriate people will be invaluable to our study.

I would like to assure you that there is no product marketing, promotion or sales involved in the research. As a member of ESOMAR, the market research regulatory authority, we are bound by its strict code of conduct. As such we never pass on contact details to third parties and any information we gather is aggregated in such a way as to ensure patient anonymity

If you are interested in taking part in this interview, please feel free to get in contact either by email or on the telephone number below to find out more details.

Once again, your participation would be greatly appreciated. If you can forward this letter to as many people as possible it would enable us to offer the chance to participate in this study to as many people as possible. I have also attached a flyer that you can pass around or put on your notice board, if you wish. Please do not hesitate to contact me should you require any more information.

Thank you in advance,

Kind Regards,

Vincent Wills

Database Manager

Phone: +44 (0) 20 8747 3620

Mobile: +44 (0) 78 8966 9865
Vincent.wills@ems.eu.com

15 Sep

Camberwell Community Council, Wednesday 22 September

The next meeting of Camberwell Community Council on Wednesday 22 September, in Southwark Town Hall.  This is your chance to meet your councillors, find out what is happening in your area and to have your say about local issues.  You can also meet other people from your area, council officers and service providers.

The theme of the meeting will be “old age in an age of cuts” and will include:

a talk on the theme from Brenda Bond of Age Concern Lewisham and Southwark as well as presentations and discussions on:

  • Southwark’s street leaders
  • an update on the budget consultation
  • transport in Camberwell
  • Camberwell leisure centre update and
  • the revitalisation of Burgess Park.

In addition if you want to hear The Welcome Singers perform then come along from 17:45.

Date:           Wednesday, 22 September 2010

Venue:  Southwark town hall, Peckham Road, SE5 8UB on the ground floor

Time:           6 p.m. – 8 p.m.

The dates of future meetings are:

Thursday, 4 November 2010

Tuesday, 7 December 2010

Wednesday, 2 February 2011

Wednesday, 2 March 2011 and

Wednesday, 20 April 2011.

Find us

Southwark Carers
3rd Floor, Walworth Methodist Church,
54 Camberwell Road, London, SE5 0EW
View map and directions

Contact us

020 7708 4497

Find us

Nearest tube: Elephant & Castle underground station (Northern and Bakerloo lines).

Nearest Railway Station: Elephant & Castle

Buses from Elephant and Castle: ask bus driver for Burgess Park. Bus numbers: 12, 171, 148, 176, 68, 484, 42, 40, 45