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End-of-life care for terminally ill ‘needs major overhaul’

The UK’s care system for dying patients with terminal illnesses is lacking and needs a major overhaul, says a damning new report.

According to London School of Economics researchers, more than 100,000 people a year who would benefit from palliative care are not getting it.

Patients are being left without sufficient pain relief and respite.

NHS England said it was committed to ensuring terminally-ill patients got the support and services they needed.

Ageing population

The report found inequalities in access to good care, with certain groups of patients more likely to miss out.

With an ageing population and demand for care increasing, the problem looked set to worsen, it warned.

Those who currently miss out include:

  • the “oldest old” (aged 85 and over)
  • people living alone
  • people living in deprived areas
  • black, Asian and ethnic minority groups

Most palliative care goes to cancer patients, even though the diseases account for less than a third of deaths.

Only a fifth of new referrals to specialist end-of-life services are for people with non-cancer diagnoses.

According to the report, commissioned by the Marie Curie charity, providing palliative care to those that need it could improve the quality of life for thousands of patients and save the NHS money by preventing unwanted and distressing hospital treatment.

By their calculations, the net potential savings are more than £30m in England, at least £2m in Wales, more than £1m in Northern Ireland and more than £4m in Scotland.

Meanwhile, a separate MORI poll of 500 health professionals who look after terminally-ill patients – also commissioned by Marie Curie – reveals that many feel there is insufficient funding and staffing to provide the level of care needed.

Likewise, a recent poll of 1,067 carers – mostly family members, friends or neighbours of terminally-ill people – felt the current care system did not offer enough support.

Dr Jane Collins, chief executive of Marie Curie, said: “Everyone affected by terminal illness should have access to all the care and support they need, regardless of their personal circumstances. This report shows that this is not the case, and some groups are getting a worse deal than others. We don’t think this is good enough.”

Katherine Murphy, chief executive of the Patients Association, called the current situation a “national disgrace”.

“These findings mirror many of the inquiries to our national helpline. It is unacceptable that we continue to fail the most vulnerable in our society.”

Dr Bee Wee, national clinical director for end-of-life care at NHS England, said: “NHS England is committed to ensuring that all patients get the support and services they need towards the end of life.”

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