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9 Jul

New study shows that caring for a sick relative can IMPROVE your health

Being a carer for a sick or disabled relative is acknowledged to be a stressful role that can cause ill-health.

But a study has concluded that helping loved ones can sometimes promote the health of the helpers.

A team of researchers led by psychologist Dr Michael Poulin, of the University of Buffalo, analysed helping behaviour and well-being among 73 spousal carers.

Dr Poulin found that carers experience more positive emotions and fewer negative emotions when they engage in ‘active care’ like feeding, bathing, toileting and general physical caring for the spouse.

But the study found that passive care  -  which requires the spouse to simply be nearby in case anything should go wrong  -  provokes negative emotions in the carer and leads to fewer positive emotions.

Dr Poulin said: ‘Our data doesn’t tell us exactly what psychological processes are responsible, but we hypothesise that people may be hardwired so that actively attending to the concrete needs and feelings of others reduces our personal anxiety.’

The study involved 73 subjects, aged from 35 to 89 with an average of 71.5, providing full-time home care to an ailing spouse. Participants carried Palm Pilots that beeped randomly to signal them to report how much time they had spent actively helping or being on call since the last beep, the activities they engaged in and their emotional state.

The researchers found that age had no moderating effects on the association between caring and well-being.

One variable that did affect outcome was the level of perceived interdependence  -  the extent to which carers viewed themselves as sharing a mutually beneficial relationship.

In these cases, said Dr Poulin, ‘the positive effects of active care were particularly strong’.

Dr Poulin added: ‘Overall, we wouldn’t say that caring for an ailing loved one is going to be good for you or healthy for you, but certain activities may be beneficial, especially in high-quality relationships.’

Governments come under pressure to provide respite for carers. However, Dr Poulin said: ‘As this study demonstrates, it is extremely important that caretakers receive the right kind of relief at the right time  -  perhaps less time off from active care duties, and more time off from the onerous task of passively monitoring an ailing loved one.’

The study was published in the journal Psychology and Aging.
2 Jul

More power to the patient

Patients will be offered more choice and control over their healthcare with the launch of the first direct payment scheme, Care Services Minister Paul Burstow announced today.

Eight Primary Care Trusts will begin to road test direct payments for personal health budgets. This will allow Primary Care Trusts to give the money for someone’s care directly to them, allowing individuals to decide how, where and from whom they receive their healthcare, in partnership with the local NHS.

Previously, personal health budgets could only be held by a Primary Care Trust or third party.

The cost of providing direct payments will come from existing funding within PCTs. Direct payments can be paid to patients in a number of ways, including monthly direct payments or a lump sum for a one off purchase such as a piece of equipment.

The scheme is designed to help individuals with a range of health conditions including people with diabetes, stroke, heart disease, end of life care and mental health conditions.

People can use their personal budgets in a number of ways. For example, one patient who suffers from chronic pain following removal of a spinal tumour uses her personal health budget for long term, extensive massage and hydrotherapy sessions to relieve chronic pain without the side effects of painkilling drugs, drowsiness and disorientation.

Another patient’s personal budget enabled him to spend his last few months at home with his daughter and grandchildren. The budget was used to provide flexible care while his daughter was at work, rather than the more traditional four times a day short visits.

Piloting direct payments is part of wider programme testing personal health budgets. More PCTs will be authorised to offer direct payments over the coming year. The pilot programme will inform decisions around how to proceed with wider, more general roll-out.

Care Services Minister Paul Burstow said:

‘This is an important step towards putting patients at the heart of everything the NHS does.

‘Direct payments have real potential to improve the lives of individuals with long-term health needs by putting treatment choices in their hands. That is why we are driving forward the commitment in the Coalition Agreement to extend access.

‘There is strong evidence from the social care sector that direct payments help achieve better outcomes, and give people more choice and control over the care they receive. It also encourages a more preventative approach. It is a step away from the rigidity of the Primary Care Trusts deciding what services a patient will receive.

‘Direct payments will not work for everyone or for all patient groups or services, but we want to identify whether, for whom and how they could offer an opportunity to help achieve the best health and wellbeing outcomes. That is why we are developing this pilot programme.

‘It will stop healthcare from slipping back to the days of one-dimensional, like-it-or-lump-it services.’

Notes to Editors

The authorised PCTs are:

(Lead PCT: Conditions or services included in pilot)

Doncaster PCT: Continuing healthcare and mental health

Eastern and Coastal Kent PCT: Continuing healthcare, end-of-life care, maternity, and mental health

Central London (joint bid from Hammersmith and Fulham PCT, Kensington and Chelsea PCT and Westminster PCT): Continuing healthcare, stroke, COPD, diabetes and long term neurological conditions

Islington PCT: Continuing healthcare (in limited circumstances, with expansion subject to further approval)

Merseyside (Joint bid from Knowsley PCT, Liverpool PCT and Sefton PCT): Mental health

Oxford PCT: Continuing healthcare and end–of-life care

Somerset PCT: Children in transition to adult services, learning disabilities, long-term neurological conditions

West Sussex PCT: Carers of people who have recently been diagnosed with dementia, children in transition to adult services, continuing healthcare

These pilots will run until 2012.

A personal health budget involves:

  • An individual knowing how much money they can spend on their health care (their budget) before discussing and deciding what care and services they want.
  • The PCT and the individual agreeing a care plan which sets out:
    - what the individual’s health needs and desired outcomes are;
    - the amount of money in their budget;
    - how this money will be spent to meet the individuals needs/outcomes.
  • Regular review of the care plan (at least once a year), and monitoring of how the money is spent. The money should meet the full cost of the agreed care plan.

The direct payment sites are all part of the Department of Health personal health budget pilot programme, which involves around seventy PCTs across England.

The cost of direct payments will be borne out of existing funding streams. In most cases PCTs are carving money out of the relevant condition specific budget. The evidence from social care suggests that personal budgets are cost neutral across the system.

2 Jul

Five million adults ‘act as carers’

Five million adults in England are acting as a carer for a sick, elderly or disabled person with more than one in five providing care for more than 50 hours a week, according to figures.

The percentage of carers aged 16 and over providing 50 hours or more care a week has more than doubled in the past nine years from 10% to 22%, provisional figures from the NHS Information Centre showed.

Nearly half of carers – 48% – provide 20 hours or more of care a week and 30% provide 35 hours or more, according to figures from the centre.

Over a third, 35%, of carers look after a parent, while over a quarter, 27%, care for their spouse or partner.

One in 10 care for a friend or neighbour, 14% for their child, 9% for a parent-in-law, 5% for a grandparent and 9% for other relatives.

Nearly half of carers, 47%, said the quality of their life was “all right” while just over a third, 36%, said it was either “good, very good or could not be better”.

The remaining 17% said their quality of life was either “bad, very bad or so bad it could not be worse”.

The figures were taken from two reports – a survey of carers involving results from 2,400 interviews, and a survey of carers known to councils with adult social services responsibilities, which received 35,000 responses.

NHS Information Centre chief executive Tim Straughan said: “The report suggests that the majority of carers are female, most are from a white ethnic background and nearly half of those known to councils are aged 65 or over. Our figures also suggest many carers are spending 50 hours or more per week looking after the person they care for, who is most often a spouse, partner or relative.

“Social care is a broad and complex area in this country and these figures are important, as they help both social care professionals and the wider community understand the impact that caring has on our society.”

30 Jun

Do you have computer and internet access for your child?

Home Access is a government initiative to help families on low income to buy a computer and get online. If your child has special educational needs, assistive technology packages can also be provided. It is open on a first come, first serve basis, to families on certain benefits, with children in Years 3 to 9.

Call the Home Access Grant line

0333 200 1004

www.homeaccess.org.uk

28 Jun

Welfare crackdown begins with drive to reduce incapacity benefit claims

Ministers are to signal a tougher approach to incapacity benefit this week as the next stage of its welfare reforms, by reducing the benefit levels of those tested if they are found capable of doing some work.

Details are expected to be announced by the work minister, Chris Grayling, this week. Early pilots suggest half of those assessed are being taken off the higher rate benefit on the basis that tests reveal they are fit to do some work, government sources say.

Those deemed capable are likely to be required to do more to make themselves available for work if they are to continue receiving benefit.

Ministers have also looked at whether they can speed up the testing, but denied a suggestion that they could treble the number tested.

The chancellor, George Osborne, signalled tonight that efforts to take more of those on incapacity benefit off welfare will form a significant part of plans to cut the deficit, saying: “It’s a choice we all face. It is not a choice we can duck.”

Osborne said the trade-off between cutting the £192bn welfare bill and the level of spending cuts required in other government departments will be a central feature of the first meeting this week of his pivotal cabinet committee on public spending.

Ministers are looking to see whether existing incapacity benefit claimants can be passed to new private sector welfare-to-work providers.

Osborne, speaking in Toronto at the G20 summit, said: “Some of these benefits individually are very much larger than most government departments. Housing benefit is one of the largest. In its own right, it would be treated as one of the largest government departments.

“Incapacity benefit and employment and support allowance is a very large budget. We have got to look at all these things, make sure we do it in a way that protects those with genuine needs, those with disabilities, protects those who can’t work but also encourages those who can work into work”.

Previous attempts to cut back on the cost of funding incapacity benefit, now claimed by around 2.6 million people, met with major criticism. A new system introduced by the last government to assess whether or not the sick and disabled were capable of working wrongly found seriously ill people ready to work, according to a report in March by the Citizens Advice Bureau. People with advanced Parkinson’s Disease or Multiple Sclerosis, with severe mental illness, or awaiting open heart surgery were registered as fit to work, it said.

The need to reduce the welfare bill has been intensified by renewed commitments by David Cameron and Osborne this weekend to press ahead with real terms increases in the NHS budget, as well as not cut pensioners’ winter fuel allowance.

Osborne has said he will need 25% cuts in departmental spending outside the NHS and international aid if he is to eradicate the current structural deficit by the end of the parliament. Osborne said: “We have given some very specific commitments on some benefits, we haven’t given specific commitments on others, and that’s what I want to be part of the spending review over the summer.”

Faced by renewed calls from the former chancellor Lord Lawson to stop ringfencing the NHS budget, he said: “We have committed to real term increases in the health budget for a good reason. There are very significant demographic pressures on the health service which have to be taken into account.”

But despite such assurances doctors’ leaders warned tonight that the economic crisis could have “devastating” consequences for the NHS.

The British Medical Association has warned redundancies, recruitment freezes and service cutbacks are the “early signs of the impact of the economic crisis” on the NHS. The BMA said 72% of 92 doctors surveyed said their health trust had postponed or cancelled clinical service developments because of financial pressures.

Lawson also defended plans by the work and pensions secretary, Iain Duncan Smith, to cut the housing benefit budget. He said Duncan Smith was dealing with “very legitimate concerns” about “the ability of people to move within the social housing sector”. Duncan Smith had never suggested the unemployed should “get on their bike” to find work, in an echo of the notorious phrase used by Lord Tebbit in the 1980s.

He also disclosed yesterday that he had “fought long and hard” to prevent benefits being frozen in the budget, and ensure they were uprated.

But Labour’s Ed Balls accused the government of wanting to force people out of their homes, and the shadow housing minister, John Healey, said the test would be whether the Conservatives build social housing to help council tenants move home, or instead use it as a punitive policy. The Labour government had introduced move-to-work schemes, but their impact was limited by the lack of affordable social housing, he said.

In an interview in the Sunday Telegraph, Duncan Smith said he wanted to make it easier for the long-term unemployed to move to areas where they could find work by changing the rules relating to council tenancy. “The middle class do this all the time,” he said. “You have a house, if you have to move work, you use that as a portable asset … Why is it that for a group of people on low incomes, we leave them trapped, rather than give them the same portability?” Duncan Smith made it clear he was not talking about forcing people to move to high-employment areas. But he said he wanted to deal with “under-occupation” of council homes, that there were “tons of elderly people living in houses that they cannot run” and that he wanted councils to encourage people in this position to move into smaller properties.

Balls accused the government of wanting to evict the poor from their homes.

“[Duncan Smith] is saying to people in high employment areas which are more affluent, if you are living in social housing, he is saying ‘we are going to get you out of your homes to make space’. He goes further than ‘on your bike’. It is actually ‘on your bike and lose your home’.”

The Department for Work and Pensions was unable to give details of how Duncan Smith’s proposals would be implemented. But Grant Shapps, the housing minister, said he wanted to take forward the plan in the Tory manifesto to allow tenants in social housing to swap with those in other parts of the country.

15 Jun

Caring About Carers Awards- deadline extension

The nomination deadline for the “Caring About Carers Awards” has been extended until 20th June. Please advise carers of this change so that they have the opportunity to nominate their GP and practice teams who provide an excellent service to carers.

The Awards are part of the partnership between The Princess Royal Trust for Carers and the Royal College of General Practitioners (RCGP) to raise awareness of the need to support carers in primary care. They will be presented at the RCGP’s Annual Conference in October in front of an audience of more than 1000 GPs. Winners will be selected for each home nation and there will be an overall UK-wide winner. The Trust’s President Her Royal Highness The Princess Royal will sign a certificate for the winning general practitioners and their teams and the prize will also include a commemorative plaque to display in surgeries.

GPs must be nominated by one of their patients to be eligible for an award.

Please see below for guidelines on how carers can nominate their GP.

Nominate your GP

To nominate your GP or practice team write to us at the contact details below, and include the following information:

  • your name, address, telephone number.
  • your doctor’s name and surgery contact details.
  • how your GP supports you in your caring role.

Alternatively you can complete this Patient Nomination Form (1.1 MB)

All nominations should be either emailed to caringaboutcarers@rcgp.org.uk

Or send to:

Caring About Carers Award 2010
The Royal College of General Practitioners
14 Princes Gate
Hyde Park
London SW7 1PU

14 Jun

World Cup anthem profits to be donated to Carers UK

Dead Ball Specialists wrote the song to celebrate English multi-culturalism and tolerance and champions the England team’s fight to wear a ‘second star’ on their team kit – to mark a second World Cup Victory.

The single is available to download on Amazon, iTunes and Napster and alongside scoring thousands of hits on its Youtube page,The Football Association’s ‘Back the Bid Campaign’ has added it to their official Facebook page – stating, “It’s brilliant!”.

Emily Holzhausen, Director of Policy and Public Affairs at Carers UK said: “This is a fantastic song with a powerful message behind it and we are delighted that the Dead Ball Specialists are donating the profits from the song to Carers UK. The UK’s nearly 6 million carers provide a vital unpaid, function for society, saving the UK economy over £87 billion per year. However many carers say they feel ignored and invisible and the messages of inclusion and respect in the song will really ring true for them.”

Watch the video. more…
Buy the song on Amazon or Napster.
Join the Facebook campaign. more…
Follow the campaign on Twitter. more…
Visit the ‘We’re England’ website. more…

For further information contact:
Satinder Phull, Dead Ball Specialists, email: Satinder satik13@hotmail.com
Steve McIntosh, Carers UK, tel: 0207 378 4937; email: Steve.McIntosh@carersuk.org

14 Jun

Carers Week 2010 14th – 20th June

No life of my own: the fate of the UK’s carers

More than three-quarters (76%) of people looking after an ill, frail or disabled loved one do not have a life outside of their caring role, according to new research issued to launch Carers Week (14-20 June).

The results show that huge numbers of carers are left isolated and lonely, missing out on opportunities that the rest of the population takes for granted. 80% have been forced to give up leisure activities or from going out socially since becoming a carer.

The majority of those surveyed can no longer rely on relatives for support either, as these relationships have suffered as a result of caring- 75% say they have lost touch with family and friends.

Theresa, 50 from Glasgow cares for 3 people – her 2 sons, one of whom has Down’s Syndrome, and her registered blind mother. Balancing full-time work with caring has meant sacrificing her life as she once knew it. She says:

“A life of my own is a daydream.  Caring demands are relentless, and costs you your health, relationships and happiness. To have a life of my own, for just one day would be marvellous.”

Carers say they simply exist, are marginalised and invisible. Unable to socialise, to have romantic relationships, or even to consider having children, the impact on carers is emotional, mental, physical, and financial. 4 out of every 5 carers say they’re worse off while more than half (54%) say they’ve had to give up work.

Despite saving the UK economy £87 billion annually by relieving pressure on health and social services, carers are not being supported in the vital role they play for both their communities and society at large. Almost all carers questioned agreed a life of their own would be achievable if they received breaks, a decent income and were given support in times of crisis.

Carers Week celebrity ambassador, Arlene Phillips OBE, world renowned choreographer and TV personality, best known for her role in BBC 1’s Strictly Come Dancing, has shared her personal experience of caring. Arlene Philips says:

“I helped to look after my father when he was suffering from Dementia, so I know what a strain it can be, both physically and emotionally. You can feel so alone and isolated. Several million carers look after a parent, child, partner or friend, with love and dedication. Many do not receive the support and recognition they deserve. I’m supporting Carers Week, and all that it’s doing to make carers aware of the many organisations ready to care for carers.”

Carers Week is organised by 7 national charities: Carers UK, Counsel and Care, Crossroads Care, Help the Hospices, Macmillan Cancer Support, Parkinson’s UK and The Princess Royal Trust for Carers. The week campaigns for greater recognition and support for the UK’s six million carers, and celebrates the contribution carers make to society. The charities are calling for major changes to help give carers a life of their own:

Paul Matz, Carers Week Manager says:

“Carers need and deserve change. We need to see better access to advice and information, improved funding for breaks, and support and flexibility for carers at the workplace.  Only then will carers get a real chance at a life of their own, and the opportunity to do some of the things that the rest of us take for granted.”

Other celebrities supporting Carers Week, all of whom have had experience of caring, include:  Lynda Bellingham, Cilla Black, Jonathan Dimbleby, Sir David Jason,  Phyllida Law , Angela Rippon, Tony Robinson, Dr Chris Steele, John Stapleton and Miriam Margolyes.

9 Jun

IS YOUR MP SUPPORTING CARERS?

MPs from four different parties have come together to put forward one of the first motions in the new UK Parliament. Proposed by the MP for Banbury, Tony Baldry, the other lead sponsors were his Conservative colleague, Lee Scott; Hywel Francis and Rachel Reeves from Labour, Tim Farron from the Liberal Democrats and Eilidh Whiteford from the SNP.

To see the motion, and find out who has signed it so far please go to http://edmi.parliament.uk/EDMi/EDMDetails.aspx?EDMID=40928&SESSION=905

Please urge your MP to sign the motion EDM 14. You can contact your MP via the Parliament website at

http://www.parliament.uk/mps-lords-and-offices/mps /

4 Jun

Carers Week webchat with Esther Rantzen

With Carers Week fast approaching we are delighted to announce that the Princess Royal Trust for Carers have arranged a webchat for all carers with Esther Rantzen – next Wednesday, 9th June, from 7-8pm.
Esther has been in the public eye for many years, having first made her name in the BBC consumer programme – That’s Life! Innovative programmes such as Trouble in Mind (on mental health) and Childwatch followed, and Esther subsequently set up ChildLine, a free 24-hour counseling service for children and young people.
Esther has been a long-term supporter of Carers Week – she was the very first celebrity to support the new partnership formed in 2001 – having cared for her husband Desmond, until he died of coronary heart disease in 2000. Whatever your question for Esther, back in the news last month as an independent candidate in the General Election, we are sure it will be an interesting 60 minutes.
To take part in the webchat you need to first register with The Princess Royal Trust for Carers – the hosts for the event – at http://www.carers.org/user/edit-my-details.html  Once you’ve registered, it is recommend that you visit the chat room http://www.carers.org/chat to familiarise yourself with the surroundings. If you have any difficulties, please email web@carers.org

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3rd Floor, Walworth Methodist Church,
54 Camberwell Road, London, SE5 0EW
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020 7708 4497

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Buses from Elephant and Castle: ask bus driver for Burgess Park. Bus numbers: 12, 171, 148, 176, 68, 484, 42, 40, 45